Attività scientifiche

Le pubblicazioni Medico Scientifiche

Le pubblicazioni di Cure2Children sono una risorsa importante per tutta la comunità scientifica mondiale in quanto consentono di avere a disposizione le conoscenze e le linee guida per la cura dei bambini affetti da patologie potenzialmente mortaliattraverso la pubblicazione dei risultati raggiunti nelle nostre mission. Il valore aggiunto delle nostre pubblicazioni è quello di renderle open access, ovvero accessibili gratuitamente in quanto sosteniamo che l’aggiornamento scientifico deve raggiungere anche il personale medico sanitario dei Paesi più poveri del Mondo.

Pubblicazioni del 2023

• one Marrow Quality Index: A predictor of acute GVHD in hematopoietic stem cell transplantation for thalassemia. Sankalp India Foundation, Bangalore – India, Jagriti InnoHealth Platforms Pvt. Ltd., Bangalore – India, Sankalp-People Tree Centre for Paediatric Bone Marrow Transplantation, Bangalore – India, Sankalp-CIMS Centre for Paediatric BMT, Ahmedabad – India, Sankalp-BMJH Centre for Pediatric Hematology Oncology and BMT, Bangalore – India and, Cure2Children Foundation, Florence – Italy https://www.sciencedirect.com/science/article/pii/S2666636723014240



Pubblicazioni del 2022

• Priya Marwah,Stalin Ramprakash,Sai Prasad T R,Mane Gizhlaryan,Deepa Trivedi,Vaibhav Shah,Amit Chitaliya,Sandeep Elizabeth,Rajat Kumar Agarwal,Rakesh Dhanya,Lawrence Faulkner
  Is it safe and efficacious to remove central lines in pediatric bone marrow transplant patients with platelets less than 20,000/μl? - © 2022 The Authors. eJHaem published by British Society for Haematology and John Wiley & Sons Ltd.https://onlinelibrary.wiley.com/doi/full/10.1002/jha2.379



Nel 2019-2020 sono stati pubblicati 8 lavori scientifici:

• Josu de la Fuente J., Gluckman E., Makani J., Telfer P., Faulkner L., Corbacioglu S., Amrolia P., Ansari M., Balduzzi A., Dalassier A., Dalle J., Hereda Diaz C., Feuchtinger T., Locatelli F., Lucchini G., Galimard J., Gonzalez Vincent M., Handgretinger R., Kleinschmidt K., Lawitschka A., Perez Martinez A., Peters C., Rocha V., Ruggeri A., Sedlacek P., Svec P., Toporski J., Yesilipek A. The role of haematopoietic stem cell transplantation for sickle cell disease in the era of targeted disease-modifying therapies and gene editing- The Lancet Haematology, 7 (12):e902-e911, 2020. https://doi.org/10.1016/S2352-3026(20)30283-0
• Ramprakash S., Agarwal R., Dhanya R., Marwah P., Soni R., Yaqub N., Fatima I., Gooneratne L., Williams S., Khalid S., Sen S. and Faulkner L.: Splenomegaly may increase the risk of rejection in low risk matched related donor transplant for thalassemia and this risk can be partially overcome by additional immunosuppression during conditioning. Biology of Blood and Marrow Transplantation,26(10):1886-1893, 2020. https://doi.org/10.1016/j.bbmt.2020.06.013
• Faulkner L., Verna M., Rovelli A., Kumar Agarwal R., Dhanya R., Ramprakash S., Raghuram CP, Mehta P., Sandeep Elizabeth S., Khalid S., Batool A., Khan-Ghilani S.. Fatima I., Zara T., Marwah P., Soni R., Trivedi D., Conter V., Canesi M., Othman D., Faeq V., Kleinschmidt K., Yesillipek A., Catherine G. Lam C.G., Scott C. Howard S.C. and Corbacioglu S. Setting up and sustaining blood and marrow transplant services for children in Middle-Income Economies: An experience-driven position paper on behalf of the PDWP of the EBMT Bone Marrow Transplantation, 2020, https://doi.org/10.1038/s41409-020-0983-5.
• Faulkner L.: Telemedicine in COVID-19 Era: Lessons from Online Co-Management of Bone Marrow Transplant Patients. Journal of Islamabad Medical & Dental College 9, n. 2 (2020): 79–81. https://doi.org/10.35787/jimdc.v9i2.550.
• Dhanya R., Agarwal R.K, Sedai A., Kumari A., Parmar L., Hegde S., Gowda A., Gujjal P., Pushpa H, Dasaratha Ramaiah Jinka D.R., Karri, C., Jali S., Tallur N., Shenoy U., Pinto D., Ramprakash S., Raghuram S., Trivedi D., Cao X., and Faulkner L. ‘Life expectancy and risk factors for early death in patients with severe fhalassemia syndromes in South India’. Blood Advances (2020) 4 (7): 1448–1457. doi: 10.1182/bloodadvances.2019000760
• Faulkner L. How to setup a successful transplant program for hemoglobinopathies in developing countries, the Cure2Childre approach. Hematology/Oncology and Stem Cell Therapy (2020), doi: 10.1016/j.hemonc.2019.12.010.
• Marwah P. Rajpreet S., Ramprakash S., CP Raghuram, Trivedi D., Agarwal R. K., Dayana R., Sedai A., Kumari A., Parmar L. and Faulkner L. The impact of Host vs. Graft mismatches on rejection of haploidentical bone marrow transplants in thalassemia patients using post-transplant cyclophosphamide. Bone Marrow Transplantation. doi:10.1038/s41409-019-0692-0
• Agarwal, R. K., Sedai A., Kumari A., Parmar L., Dhanya R., Dhimal S., Shriniwas R., Ramprakash, S. and Faulkner, L. Information Technology-Assisted Treatment Planning and Performance Assessment for Severe Thalassemia Care in a Resource-Limited Setting. Journal of Medical Internet Research 7 (2019): e929,1.

Ecco l’elenco completo delle nostre altre pubblicazioni:
• Faulkner, L. The Rising Global Burden of Hemoglobinopathies, A Challenge and an Opportunity for Health Care in Pakistan. Journal of Islamabad Medical & Dental College 7 (2018): 1–4.
• Parmar, L., Sedai, A., Ankita, K., Dhanya, R., Agarwal, R.K., Dhimal, S., Shriniwas, R., Iyer, H.V., Gowda, A., Gujjal, P., Pushpa, H., Jain, S., Kondaveeti, S., Dasaratha Ramaiah, J., Raviteja, Jali, S., Tallur, N.R., Ramprakash, S., Faulkner, L. Can inequity in healthcare be bridged in LMICs – Multicentre experience from thalassemia day care centres in India. Pediatric Hematology Oncology Journal 2:88-93, 2017. https://doi.org/10.1016/j.phoj.2017.12.002.
• Agarwal, R.K., Sedai, A., Kumari A., Parmar, L., Dhanya, R., Dhimal, S., Shriniwas, R., Sumithra P, D., Iyer H., D., Gowda, A., Gujjal, D.P., Pradeep R, D., Jain, D.S., Kondaveeti, D.S., Ramaiah, D.J., Raviteja, D., Sharma, D.H., Jali, D.S., Viragi, S., and Faulkner L. Multi-institutional, retrospective review of blood transfusion practices and outcomes in a large cohort of thalassemia patients in South India. Pediatric Hematology Oncology Journal 2:74-78, 2017. https://doi.org/10.1016/j.phoj.2017.12.001.
• Ramprakash, S., Agarwal, R., Dhanya, R., Marwah, P., Soni, R., Yaqub, N., Fatima, I., Zhara, T., Gooneratne, L., Williams, S., Khalid, S., Sen, S., Kanwar, V. and Faulkner, L. Low-cost matched sibling bone marrow transplant for standard-risk thalassemia in a limited-resource setting. Pediatric Hematology Oncology Journal, 2:107-113, 2017. https://doi.org/10.1016/j.phoj.2017.12.002 .
• Ramprakash, S., Agarwal, R.K., Dhanya, R., Sedai A., Kumari A., Parmar L., Srinivas R. , Rao Kakulamari, V., Marwah, P., Soni, R. Williams, S., Rathnayake, W., Sen, S., Tulpule, S., Faulkner, L.: Rejection of Paternal vs. Maternal Fully Matched Bone Marrow Grafts in Children with Thalassemia. Bone Marrow Transplantation 52(11):1585-1586, 2017.
• Agarwal, R.K., Kumari, A., Sedai, A., Parmar, L., Dhanya, R., and Faulkner, L.: The Case for High Resolution Extended 6-Loci HLA Typing for Identifying Related Donors in the Indian Subcontinent. Biology of Blood and Marrow Transplantation 23(9):1592-1596, 2017.
• Faulkner, L., Uderzo C., Khalid S,, Marwah P., Soni R., Yaqub N., Amanat S., Fatima I., Khan Gilani S., Zahra T., Ramprakash S., Gooneratne L., Dissanayake R., Williams S., Rathnayake W., Srinivas R., Sedai A., Kumari A., Parmar L., Dhanya R. and Agarwal R.K.: ATG vs. Thiotepa with Busulfan and Cyclophosphamide in Matched-Related Bone Marrow Transplantation for Thalassemia. Blood Advances 1(13):792-901, 2017.
• Parikh, N.S., Howard S.C., Chantada G., Israels T., Khattab M., Alcasabas P., Lam C.G., Faulkner L., Park JR., London W.B., Matthay K.K.: SIOP-PODC Recommended Graduated Intensity Guidelines for Diagnosis, Risk Stratification and Treatment of Neuroblastoma in Resource-Limited Countries. Pediatric Blood & Cancer 62(8):1305-16 (2015),
• Faulkner, L. A global response to a global problem: The rising burden of hemoglobinopathies. Blood and Cancer Secrets 2, 7–13 (2014).
• El Missiry M., Hamed Hussein M, Khalid S., Yaqub N., Khan S., Fatima I., Uderzo C., and Faulkner L. Assessment of Serum Zinc Levels of Patients with Thalassemia Compared to Their Siblings. Anemia 2014 (August 14, 2014): e125452. doi:10.1155/2014/125452.
• Faulkner L. Hematopietic Stem Cell Transplantation for Thalassemia, Price and Prejudice. In Thalassemia: Causes, Treatment Options and Long-Term Health Outcomes, 71–81. Recent Advances in Hematology Research. Makenzie Greene, 2014.
• Agarwal R.K., Sedai A., Dhinal S., Agarwal A., Clemente L., Siddique S., Yaqub N., Khalid S., Itrat F., Khan A., Gilani, S.K., Marwah P, Soni R., El Missiry M, Hussain M.H., Uderzo C. and Faulkner L. A Prospective International Cooperative Information Technology Platform Built Using Open-Source Tools for Improving the Access to and Safety of Bone Marrow Transplantation in Low- and Middle-Income Countries. Journal of the American Medical Informatics Association: JAMIA 2014, doi:10.1136/amiajnl-2013-002594.
• Yaqub N., Khalid S., Fatima I., Khan A., Khan Gilani S., El Missiry M., Hussain M.H., Uderzo C., and Faulkner L.: Second Bone Marrow Transplantation for Thalassemia Major Using Post-Transplant Cyclophosphamide. Bone Marrow Transplantation, 49:845-846, 2014.
• Faulkner L., Uderzo C., and Masera G.: International Cooperation for the Cure and Prevention of Severe Hemoglobinopathies. Journal of Pediatric Hematology/Oncology 35(6):419-23, 2013.
• Faulkner L. Setting up Bone Marrow Transplantation for Children with Thalassemia May Facilitate Pediatric Cancer Care. South Asian Journal of Cancer 2:109-112, 2013.
• El Missiry M. and Faulkner L. Thalassemia, St Jude Children’s Research Hospital, Cure4Kids Oncopedia, May 2013
• Mehta, P.A. and Faulkner L. Hematopoietic Cell Transplantation for Thalassemia: A Global Perspective. Biology of Blood and Marrow Transplantation: Journal of the American Society for Blood and Marrow Transplantation 19(1 Suppl) 2013: S70–3, 2013.
• Hussein, M.H., El Missiry M., Khalid S., Yaqub N., Khan Gilani S., Fatima I., Zara T., Marwah P., Soni, R., Bernard F., Manna N., Uderzo C. and Faulkner L.: Bone Marrow Transplantation for Thalassemia: a Global Perspective. Thalassemia Reports 3:103–107, 2013. doi:10.4081/thal.2013.s1.e42.
• Faulkner L., Yaqub N., Khalid S., Zhara T., Ansari S., Farzana T., Shamsi T.: Transplantation in low resource countries. Thalassemia Reports 1:30-33, 2011, doi:10.4081/thal.2011.s2.e9